Managing long covid / cfs. Energy diary

Hi all,

I am looking for a way to track everyday activities (walking, taking a shower, having a phone call, meeting etc) and their impact on energy levels. This is key for patients suffering from CFS, chronic fatigue symptom, or long covid with similar symptoms. Activities could be bundled (or customized by person) e.g. i select „1“ for baseline activities that do not cost energy, „2“ for reading etc. The idea is to get a picture of the full day, using the watch as the entry tool only.

Of course, ability to analyze in connect or export to other tools would be great. Many patients suffer from post exertional malaise, ie symptoms occurring 12-36 hours after the activity.

so far, i have only found apps that are either a pain to customize or a pain to insert data. Both is not ideal for patients that tire out easily cognitively. Unfortunately i speak from own experience and today is the first day in a week that i can handle emails.

MVP would be to just have a data field where users could select numbers from 1 to 8 or so to help track the day. The energy cost by activity might differ by user anyhow, so it could be kept open.
But i am not sure it is possible to select the data field somewhere while tracking heart rate, breath rate etc also. In combination, probably the data for heart rate, breathing frequncy, oxygen, body battery, stress would be interesting for most fatigue patients to look at.

i would be so happy for any developers to pick that up…and probably fatigue related patients are an interesting user group right now and going forward. Wish it were not so.

Top Replies

Reluctant over 2 years ago +1

This would be great.

Also being able to say how well I felt I slept, rather than having the app assume it based on time and deep sleep.

All Replies

0 MikeySD over 3 years ago

I'm interested in this, too. So far I've been using the "Bearable" mobile app to keep a diary of symptoms, energy, mood, etc.

0 Reluctant over 2 years ago

This would be great.

Also being able to say how well I felt I slept, rather than having the app assume it based on time and deep sleep.

0 5368934 over 2 years ago

This app (https://www.pathizehealth.com ) although on your phone will integrate with Garmin's data and looks like it could be worth registering for

0 ginger cat 2 days ago

Hey,

I guess in 4 years you either found your ways (please share) or hopefully recovered.
I'll share what I do to monitor, maybe it is useful for others and maybe more people share?

What I do is that I have some Activity types configured on the watch, for example for walking the dog or doing "life things" like making tea or food... When I start doing it, I start the Activity in the watch - I have them configured with HR high level alarm, so I know when to stop. Once finished, I give the rating for the activity (how hard it was).

For recording general state during the day, I add notes in the phone Connect App to the Sleep Report, both when I wake up and when I go to sleep, I just add a line how the day was.

Also, I have added several things I am interested in tracking into the Lifestyle habits logging.

I wish there was a better way to display the data, maybe some dashboard, that would allow to more easily correlate activity, HR, stress, sleep over several days. Also, a better way to bulk export that data would be priceless.
In my case this is the only way I can prove to medical personnel that I really have a serious health condition.

Indeed, with millions of people suffering ME/CFS and long covid, there is an un-adressed market gap :P

What I really like about Garmin is data privacy, accuracy of metrics and also, I was positively surprised that even if I stay in bed and occasionally go out round the flat, Garmin recognizes how tiring and (physically) stressful it was and call it intense exercise! So Body Battery drain is more or less as I feel it.